Acts of Kindness: Woman raising money to help cure cousin's rare - NBC12 - WWBT - Richmond, VA News On Your Side

Acts of Kindness: Woman raising money to help cure cousin's rare condition

RICHMOND, VA (WWBT) -

Life with a tracheotomy tube, hooked up to a ventilator every night, daily medical care, a nurse accompanying him to school are all 11-year-old Walker Day has ever known.

The oldest of three boys, Walker was born with a central nervous system disorder called Congenital Central Hypoventilation Syndrome or CCHS.  There is no cure for CCHS, but Walker's family has set up a Gofundme account to raise money for a life changing surgery. Pacers were implanted in Walker's diaphragm to allow him to live without a tracheotomy tube.

Debbie Seal says her best friend Madge Horne has been actively distributing fundraising information about Walker's treatment. She says Madge is always helping others and has been there for her since the death of her husband and a debilitating leg injury.

"...If you need an angel, call Madge. There she is," Debbie says.

"Once in a while, somebody needs a pat on the back, and I want to be the one there," Madge says.

Madge, a retired cafeteria worker, has been fundraising to help an 11-year-old boy with an incurable medical disorder get a life changing surgery. Now Debbie is recognizing Madge’s generosity. "From my heart and the way you've taken little Walter under one of your angel wings, I want to give you this $300 dollars."

Debbie says Madge has been through some recent hardships of her own and a gesture of kindness will go a long way. Madge says it means a lot to her to see how many people have stepped up to help Walker.

"It made me feel good [that] I was doing something to help my cousin out," Madge says.

The family will have to make several trips to UCLA Children's Hospital for Walker's surgery. "They've got to have money to stay out there for two weeks at a time," Madge says.

Madge says she hopes the treatment will ultimately allow Walter to realize a lifelong dream. "He wants to go to the ocean and swim with the dolphins," she says.

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